As an artist, I find it easier to express myself through writing. I wrote this poem in 2011, while dealing with neuropathic pain along with arthritis plus overuse syndrome due to my Cerebral Palsy.
Blessed that my neuropathic pain has lessened over the years; I still can’t believe I lived through that. For anyone who is suffering from this type of pain, it’s miserable. Your life is ripped away from you, they said that rest as in a (power wheelchair) and Ibuprophin might help the pinched nerve that had been causing the pain and sure enough about four years of unrelenting misery, I started to notice a difference. I still have it but it isn’t constant like before, and I have resumed my life; dumped the power chair for my “chariots of Fire” manual Colours wheelchair.
I still live with constant pain, but it’s nothing compared to the neuropathic pain I experienced.
My entire body aches my hands and spine burn like someone set them on fire...
It's the same ole' feeling..
I never know when it's coming...
Pain invades my body without warning...
Neuropathic pain is a bitch...
How rude to intrude on my day like this...
I was feeling great and now you're here...
Like an unwanted guest who won't leave...
I never know how long you'll stay, I'm so glad when you leave ... I can breathe again, It's amazing...
Fatigue and Pain try and rule my world...
They steal my sleep makes it hard to deal...
For me Pain is the hardest thing about being gimpy...
I don't sweat the small stuff...
I let things slide..
I'm a survivor,
I never give up...
You can ask anyone..
They will agree...
No one is more determined than me...
Have friends who support me and a guy who loves me…
What's cooler then that?
So even though the darkness comes there's always light..
Even if I can't sleep tonight...
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