Rolling Without Limits

Your mobility may be limited. Your voice, boundless.

An introduction: my life until now
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An introduction: my life until now

This is just an introductory post for Rolling Without Limits. I am a 50-something woman who has mobility problems. I am not in a wheelchair but can't climb stairs or curbs. I use a specialty transit program to go places as I can't climb up the stairs of a regular bus.  I have trouble getting up from a sitting positing, especiially a low chair or the toilet. I haven't had my problems totally diagnozed but it is a myopathy that is slowly, very slowly, getting worse. Supposedly I have had it all my life but no one put it together before.

It took me a long time to learn to tie my shoelaces as a child, it took me a long time to learn cursive writing which the teacher made me feel badly about, I used to fall off the wall in the schoolyard a lot. I failed gym in grade 9 because I couldn't keep up. I walked with a roll. All of this added up to very poor self esteem on my part. 

My myopathy was discovered when I passed out the day after my 30th birthday which caused a hairline fracture in my skull. The tests at the hospital and the fact the doctor noticed that my left side was thinner than my right made me realize that my entire life I had been called lazy or called duck due to a physical problem. It did make me feel much better about myself.

My problems have gotten worse over the years; 10 years ago I had no problem climbing stairs and I could climb on and off the bus. But, I am lucky in that, as I said, it's a very slow decline in my mobility.

All this has given me a greater understanding of what people have to deal with every day. When I could climb stairs I never thought about it, never realized how many stores are hard to get into because of stairs or a high step in front. I think very carefullly about visiting people in their homes; Will there be stairs? Will there be a high door step? Will I be able to use the bathroom? As a result, I don't visit people that much unless they live in an apartment or a range style house. When I am planning to go out, I use Google maps to check out the front door of the place and figure out if I could get in. It certainly has made my life more insular and lonely at times. 

Thankfully, I am currently working from home as a freelance writer. Still struggling to earn a full living wage but getting there.

 

Leave a Comment

  1. Akanksha
    Sorry to know that Susan. Our society still needs to learn something called compassion.
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  2. Teresa Thomas
    Teresa Thomas
    Susan Keeping, I thank you for this little story. Wow! I hear your pain about climbing stairs. I have arthritis in both of my knees. At times, I often wonder, am I able to, or can I have the ability to climb stairs anymore myself. I just recently, gone back to work, and am very thankful, that my new job does not have any stairs to go up and obtain any of the stock ups that we need at my new job. All of the stock ups are in the back of the fast food restaurant called Jack In The Box. I would have thought twice if I knew, that there would be stairs involved that would require me to go up and down them for anything. At times, now that I am working again, I wonder, if it was the right thing to with the way my knees are? I will see how things goes. If I'm unable to do any of my performances then, I will contact my orthopedics and inform him about the matter. I too, am still, struggling with the thought of finding a way to work here in the home. Take care.
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  3. Eve Sherrill York
    Hello. It is good to see you here. Enjoyed your blog. Am following you. Keep it up! Voted
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