Around May 2015, I read a story about Jean Sharon Abbott. A friend mutual friend of ours sent me her story, and I read it. It was about a woman who spent 33 years thinking she had Spastic Dipledga Cerebral Palsy when, in fact, she has "Dopa Responsive Dystonia."
After reading her story, I thought "WOW, that's great for her". A week later, I noticed there was a link to a video from the article, and I clicked on it. I watched intently and listened to her story, she was showing what the meds do for her by coming off of it and then back on them. She explained that with this pill, it turns off all her symptoms, and she walks very well. "Dopa Responsive Dystonia" mimics Spastic Diplegia and it's nearly impossible to tell the difference unless you know what you need to look for. As a child, Jean saw two renown neuro surgeons that said she had CP. Only after seeing one more doctor in her late 30s she was diagnosed with DRD.
As I watched the video and listened to her story, I kept thinking she was me. Everything she said rang true for me as well. From that moment on my life changed drastically.
I quickly contacted her on Facebook and asked her a million questions that she was all to happy to answer. I made a doctors appointment and armed with all the information I could gather I made my plea to my general doctor. While in the office, she did her own research, and we thought that it would be best for me to at least try it.
Eager to try it, I came home and took half a pill within a few hours I was sitting on the couch with my hubby and noticed my toes were uncurled for the first time in my life. They were actually RELAXED! I was so excited I could hardly stand it. Everyone says if it's going to do something you'll notice fairly quickly. I couldn't wait to wake up and see what new things I could do now that I had my magic pills.
I have noticed I'm not dizzy anymore when standing and I am very steady standing unassisted. I've even taken a few steps by myself which I could never do before. My biggest issue is my chronic pain, but that's not going to stop me from working toward the chance to walk, something I'd never even dreamed would have been possible before.
Hope you will follow my journey as I plan on writing about my experience as time allows.